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Wednesday, February 21, 2024

Four Years Trapped In My Mind Palace by Johan Twiss

Fourteen-year-old Aaron Greenburg has been locked in his mind for the last two years. He and his two friends, Mike and Leon had gone swimming in the "murky waters of Dingleberry Creek in Bradley, California during a scorching July afternoon. It was his last day in Bradley before he and his parents, Robert and Linda moved to a city in the Bay area, Concord. Aaron and his friends spent "the day flying from the rope swing into the old swimming hole at Dingleberry Creek." Three days later, Aaron was in a new city, without his friends and so ill he couldn't move at all. At San Francisco General, Dr. MacPhearson diagnosed Aaron with a rare form of cryptococcal meningitis. Although his parents weren't aware of where Aaron and his friends had been, Aaron knew that he had contracted this bacterial illness from Dingleberry Creek where eucalyptus trees had been planted around the swimming hole.

Dr. MacPhearson told Aaron's parents that he was "as good as dead. He is completely unresponsive and in a vegetative state. We highly doubt he can hear or even recognize you and that the meningitis has caused severe and irreparable brain damage."  This is shocking to Aaron who can hear everything being said about him but is unable to respond in any way. For three months, his parents attempted to care for him at home but with both of them being in their sixties, it simply too much. His mother was forty-six when she had Aaron, a surprise baby! Now he lives in Restwood Suites Senior Care Center in Walnut Creek. 

At Restwood, Aaron is fed through a tube in his stomach. His only form of entertainment at first looking at a painting of a bowl of fruit on a table. Aaron would pull this painting into a magical world he creates, called his mind palace, a sort of castle - where he and the fruit have adventures.  Eventually Nurse Penny donated a black and white television with a VHS recorder and two tapes of Sesame Street from 1976. Except it's now 1987!

Aaron's life changes drastically once again, when an elderly man, Solomon Felsher is placed in his room. Solomon is a former jazz musician, who is Jewish, has dementia and needs constant supervision. His daughter Talia helps him get settled in and promises to bring Betty, his saxophone the next time she visits in a few weeks.

Once they are alone, Aaron makes the astonishing discovery that Solomon can hear his thoughts in his head. This means for the first time in two years, Aaron can communicate with another person. Over the next few weeks, Aaron shares conversations with Solomon and discovers he can only hear Aaron's thoughts, observations and questions that Aaron directs towards him as if in conversation. If Aaron is just thinking thoughts he can keep them private. This is a relief to both Aaron and Solomon.

However, Aaron also discovers that when Solomon is having a dementia episode, he gets pulled into Solomon's memories and becomes a part of them, actually living out those memories in his mind. This extra mental stimulation has a profound healing effect on Aaron as he begins to make a miraculous recovery.

Discussion

Four Years Trapped In My Mind Palace is a unique novel that combines realistic fiction with historical fantasy novel by award-winning author Johan Twiss. 

Author Johan Twiss writes in his Author's Note at the back that the genesis of the novel was a news story about a man who contracted a rare form of meningitis when he was child. This illness resulted in full paralysis, and being trapped in his mind, fully aware, for fourteen years. No one recognized this but fortunately the man eventually achieved enough recovery to marry and have a life. This situation reminded the author of men he knew who were also trapped in their minds, but by dementia and Alzheimers. "Merging these two experiences together Aaron and Solomon's  story developed -- a coming-of-age story entwined with and end-of-age story written with a hint of nostalgia, a hint of whimsical unknown, and a heartwarming hope for the beauty of life."

In Four Years Trapped In My Mind Palace, the main story of the novel is the relationship between a teenage boy, Aaron Greenburg who is in a "vegetative" state, (a loathsome term that is used quite frequently and should be replaced by something more accurate like non-responsive state) and an elderly man Solomon Flesher, who is suffering from dementia. Inexplicably, the two, who are roommates in a senior's home, can communicate via their thoughts. This allows Aaron to experience some of the defining events Solomon lived through during a sixty year span from the 1920's to the 1980's.

Initially Aaron has created his own world which he calls his mind palace, a palace with many rooms. Aaron describes it as  " a giant castle surrounded by green rolling fields, bordered by a dense, dark forest..."   Aaron and the fruit from a painting in his room that he brings into the mind palace have grand adventures. However, while "...  most of the castle stayed the same, with a throne room, banquet hall, kitchen, and armory, other parts were also changing, like the north clock tower. No matter what we tried, we could never find a passageway that led to the tallest tower of the palace." For some reason, Aaron is unable to reach the north clock tower which seems to suggest that him reaching the north clock tower offers an escape from his locked-in syndrome.

When Solomon arrives, he is able to hear Aaron's conversations in his mind and is soon pulling Aaron  into his own memories when he has a dementia attack. Before Aaron arrives in those memories though, he first enters his own mind palace, but often in a new room. At first these rooms seem to be related to something Aaron cannot have in his own life. For example, the room he enters before being in Solomon's first memory of the Jack Dempsey fight, is a large dining hall with a table laden with fine china, silverware, crystal glasses and food. Aaron stuffs himself with the delicious food before passing through a door that leads to Solomon's memory.  Aaron is unable to eat in a normal manner and must be fed through a stomach tube and can only dream about eating real food. Before being drawn into Solomon's memory a second time, Aaron finds himself in an auditorium-like room, on a stage with his trombone which he misses playing. 

As he enters each of Solomon's memories, encountering a new room in his own mind palace, Aaron moves from the weapons training area before the World War II foxhole memory, to the castle dungeon before the World War II concentration camp memory, to the south tower of the castle - the second tallest tower behind the massive north clock tower before meeting Walt Disney. This journey through his mind palace mirrors the gradual healing that is occurring in Aaron's mind. For example, Aaron shed's tears at his father's pain over his impending divorce just before entering the weapons training area, then he blushes over Sarah and is able to groan before entering the castle dungeon. As Aaron's recovery continues and he begins to learn to speak again, he enters the south tower of the castle which is close to the north clock tower.  Finally, as he begins to become more physically responsive, Aaron is able to enter the north clock tower where he sees his future and is thanked by a dying Solomon for his friendship. The north clock tower represents Aaron finally being freed from his mind palace. 

It is only when Nurse Penny sees Aaron visibly blushing in response to Solomon's granddaughter Sarah that she decides to get the doctors involved in re-evaluating Aaron. Up to this point she has refused to believe Solomon's view that Aaron is awake. This leads his physician, Dr. MacPhearson to realize that Aaron is aware and healing and to begin working with him. Aaron's progress is slow but ongoing. By the end of the novel he is able to communicate verbally and is upright in a wheelchair.

Since the novel is set in the 1980's, from 1985 when Aaron contracted meningitis, to 1989 when he begins to wake up, little was understood about patients who appeared to be non-responsive but were still alive. It was assumed these patients were completely unaware and had no or little brain function. Over the years, with better medical support, some patients have recovered and revealed that though they were unable to respond, they were completely aware of everything happening around them. In some cases, patients could hear and understand family and medical professionals discuss removing life support. Readers might be interested in the research being done at Western University in London, Ontario Canada by Dr. Adrian Owen. His Owen Lab (https://www.owenlab.uwo.ca/ ) has much information on his work to determine whether a patient in a "vegetative state" is actually conscious and aware. His work has surprised the medical community and given hope to many families with members who are comatose or locked-in.

At the end of the novel Aaron has a chance to reflect on the friendship he had with Solomon and the role of sickness and suffering in life. He decides that although he wishes he had never been sick, he would not give up the friendships he formed with Solomon and his granddaughter, Sarah,  and the experiences his illness gave him. Aaron is now sixteen years old and even though he's been ill for so long, he is hopeful about his future.

Four Years Trapped In My Mind Palace is a thoughtful, engaging novel with a unique and fresh storyline that should appeal to teens and adults alike. Twiss invites his readers to consider what makes life meaningful, especially in situations like those of Aaron or Solomon.

Book Details:

Four Years Trapped In My Mind Palace by Johan Twiss
Fresno, California: Milk + Cookies     2023
320 pp.

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